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Community nurses for children/young people with a learning disability

Who we are

We’re a small team of qualified nurses or those who’ve had extensive training and experience of working with people with Learning Disabilities. We work with families and agencies in various settings to improve health outcomes for children and young people with a learning disability.

What we do

We help families to work on difficulties they have with their child/young personā€™s behaviour, toileting or sleep through an individual care plan.

We also:

  • liaise with other professionals to help enhance your child/young persons overall experience of services
  • give families with information and advice, or sign post you to other resources and services when needed
  • support your child/young person and their families through transition into adult services
  • work with groups of children /young people in schools around growing up and health promotion.

How to get a referral for your child

Any professional who knows your family can make a referral to us on your behalf.

Your child must meet the eligibility criteria. Your child must:

  • be aged 0 to 19 years and formally diagnosed as having a learning disability
  • be aged 5 to 16 years who are diagnosed with a learning disability
  • have continence difficulties, usually referred to us via their health visitor.
  • be registered with a GP in Buckinghamshire.

We can work with children/young people placed in residential settings, but this must be for no more than 38 weeks per year.

Your family needs social support exclusively for housing or respite and not for a health focussed need as above.

What happens next

When we get a referral, we’ll arrange an initial assessment with you either a face to face or a phone consultation. This will gives us more information and make sure the referral is appropriate.

We’ll then agree and prioritise your child’s level of need, and allocate a named nurse to work with you on an individualised care plan. This will help you to work on strategies with your child/young person.

We usually plan to work with families for about 6 months. We’ll then review your child’s progress and discharge your child if they’re ready.

What is a learning disability?

Different types of learning disability can differ hugely. Someone with mild learning disabilities may be able to live independently with minimal support. But someone with severe and profound
learning disabilities may need 24-hour care and help with performing most daily living skills.

Find out more about the definition of a learning disability by the Department of Health and Social Care.

What is a learning difficulty?

A learning difficulty is a condition which creates an obstacle to a specific form of learning. For example dyslexia is classed as a learning difficulty as it only affects an individualā€™s relationship
to the processing of information. It usually manifests in problems with reading, writing, and spelling but doesn’t affect the overall IQ of a child/young person.

What is Global Developmental Delay (GDD)?

It’s a condition that prevents a child from reaching key milestones of development like learning to communicate, processing information, remembering things and organising their thoughts.

Find out more

Children with autistic spectrum disorder (ASD)

They can also have a learning disability. Children with ASD may need minimal support to lead an active life or need lifelong, specialist support. To meet our criteria they must be diagnosed as having a learning disability.